Thanks so much for all of this information, Lilia.
I have learned SO much over these years of doing mind-body work; not only about mind-body work, but about other syndromes that are rare that I’ve never heard of, like this one!!
It’s not easy for physicians to find accurate information about rare disorders sometimes, so we can only imagine how patients feel when confronted with scary and debilitating symptoms.
I appreciate this group and this forum for us to learn together and teach each other!